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It takes Our Actions to Make Others' Dreams a Reality
By Paul Marshall
(first published in Hamilton
(first published in Hamilton
Spectator May 3, 2000)
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When our dreams and hopes come into reality, the sun seems to shine brighter
and the rainy days are few and far between. Our steps are that much higher,
we develop an inner peace and a joy that comes rushing out to meet and
welcome the days that are given to us. When positive circumstances are
occurring, people and communities reap a harvest of energy that flows and
touches an innermost flame.
Last week, I was having lunch with two guys who are working in my department
at the Bloorview MacMillan Centre for a short term. One is from Sweden and
the other one is from Japan. We somehow got talking about our biggest dreams
in life. My friend from Sweden is in his early twenties, and just trying to
figure out what he really wants to do with his life. He asked me what my
biggest dream was. Out of nowhere, I said "I am living it right now, I am
content doing the things in which I am involved already." I wish you could
have seen the shocked look that came over his face by my statement. As I
thought about it, I was a little shocked myself. It felt pretty good,
however, knowing deep down that I am quite comfortable with my life.
How could I say a thing like that and mean it? After all, I have cerebral
palsy, nonverbal at that! I go through my days "fighting" at almost
everything I do. I live among people who frequently see my disability before
seeing me as a person. So what clicks? Should I spend my life dreaming and
hoping of having a "normal" lifestyle without all of the struggles that come
with being disabled? I could, and likely everyone would feel I was
justified. But the facts are, I will always be a disabled person in this
life. I have learned one of life's greatest lessons. I am comfortable with
how the Lord daily shakes and molds my journey. I am convinced that He is
the potter and I am just the clay. This is why I personally can travel so
far and soar so high. It has nothing to do with being disabled, it is the
belief with which I live.
However, I do get depressed and disheartened at the lack of compassion and
the absence of a sense of duty of many persons within our society. Too
often, silent voices and cries go unnoticed. We are daily swooped away by the big headlines that
ignore the real heartbreaks, hidden behind closed doors. Let's crack one of these doors
open and take a quick look at a family that is representative of many in our
community. You
are walking into a home where a mother is trying to care for her disabled
daughter. She gets some help on a weekly basis but as you talk with her, you
find out that this help is shaky at the best of times. The gray hairs are
appearing, the aging process is taking place. You can't help but notice the
tired and helpless look. You never would ask, but you wonder what the future
holds for this family. At the same time you know there are group homes that
take care of persons with severe disabilities. So what's the big deal? Just
put her name on a waiting list. Simple, right? Don't worry that there has
been no government funding for the building of group homes for over five
years and that someone must die before a space becomes available.
I think the greatest benefit of living in countries like Canada and Sweden,
is the number of opportunities open to so many of us. That's the problem
("problem" in italics) for my friend from Sweden. He, like many in his
country and ours, has the privilege of living life with numerous options,
having opportunities to move not only in a horizontal direction but also
vertical. This means, he can go in whatever direction he wishes and do
whatever it takes to realize his dreams We don't think about it, but this is
quite amazing and vital to fostering self-worth. It gives many of us the
drive and the happiness to keep growing and reaching out personally and as a
community.
The story is quite different for those individuals I know, who are confined
to their own homes because of their disabilities. Their minds may be moving
faster than yours or mine, but they are trapped within bodies that their
"normal" minds can't control or master. When it comes to activities they
wish to join or places where they might like to live, they have very little
say and/or control. Think about this for awhile. You are sitting in a
wheelchair looking at those wheels that should be able to propel you where
you want to go, but then you look at your shaking hands, whose movements you
cannot control. You must go back into your dreams of being able to
manipulate a power wheelchair and move independently. This is life, day in
and day out, for many persons who are elderly or severely disabled. They can
only dream of
aspiring to better things (be they educational, residential, recreational,
or vocational) and moving vertically. They are confined to moving
horizontally, and even within this direction they experience severe
barriers. They must depend on us for the realization of their hopes and
dreams for opportunities to move in both directions.
We have to ask ourselves how far are we willing to go as a society to ensure
everybody ("everybody" in italics) has horizontal and vertical directional
opportunities in their life so they can reach for their own dreams. What is
this article saying to you? Are these words coming off the page and swaying
the way that you think? Will these words become more than just words and
transfer into action? I sincerely hope so. For it is action that makes
dreams and hopes come into reality. Here is my ("my" in italics) dream that
we as a community will learn to take the necessary action to ensure
horizontal and vertical movement opportunities for all.